So...I have been dropped by my downtown neurologist and my local neurologist both. I now have no neurologist.
Downtown neuro wants me to go see the mito specialist downtown --but her office doesn't want to accept me as a patient because my stain was normal. Said to submit the findings from my cardiologist and my local neuro (sharp transients on the EEG) and they'll review and "consider".
Something neurological is going on. I was told by my local neuro to drive only here locally. Fatigue definitely aggravates whatever is going on with my brain.
Not sure where to go from here. I went to my primary care MD and she is getting pretty frustrated because she writes these referrals and then several doctors have dropped me because they reach the end of what they can do.
The only treatment for mito is the supplement cocktail and diet currently (which I am doing --and have had substantial improvement on the cocktail--still have to be careful not to overdo things, but am not flat-out on the couch so much of the time now). My PCP asked why I am still pursuing the diagnosis.
I just want to be able to show that this isn't all in my head --that what is happening is real.
I'm also a bit scared because of the neuro stuff going on. I am looking at/working toward moving closer to Houston itself so that I have access to the Metro buses/MetroLift so that I can get rid of the car. I can drive for now, but I suspect that the time is coming where it will no longer be safe for me to do so. (Plus the car is a HUGE expense that is really killing me right now--I'm considering sending the car back before moving because of the money situation). I also REALLY, REALLY want to get back into dog events/training --haven't been able to due to finances --but getting rid of the car would free up some money so I can do dog stuff again. I want to finish Leon's Rally Novice title and do some Obedience.
I won't wind up moving for a while due to waiting lists and all that --but I'm wanting to get the process rolling. Also, have put off starting that process because of a guy friend here that I have feelings for (who has been an awesome, supporting person for the past 2 years). But things are getting to where I'm going to have to make tough choices to do what is best for myself.
So, tl:dr --please pray for me --that God would provide the right care for me to treat the symptoms of my disease and keep me functioning for as long as possible.
Also please pray that I would be able to find somewhere safe/clean to live in the Houston area. So many of the low-income housing places are in really ghetto/bad areas of town (as in people getting shot down in the street). So I'm doing my research and searching for housing in better parts of town with less crime/gang activity.
"Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal." 2 Corinthians 4:16-18
"Since the creation of the Internet, the Earth's rotation has been fueled, primarily, by the collective spinning of English teachers in their graves."