Health-related prayer requests

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Postby Atria35 » Tue Mar 06, 2012 4:38 am

I'm glad your friends have been able to pitch in a bit. Still praying for you!
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Postby TopazRaven » Tue Mar 06, 2012 9:48 am

I'm still praying for you Sheenar. Your faith and bravery still really astound me. Keep it up, you're doing great!
For I am convinced that neither death nor life, neither angels nor demons, neither the present nor the future, nor any powers, neither height nor depth, nor anything else in all creation, will be able to separate us from the love of God that is in Christ Jesus our Lord.

NIV, Romans 8:38-39.
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Postby AdriTan » Tue Mar 06, 2012 4:27 pm

Me and my family are praying!
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Postby Sheenar » Tue Mar 20, 2012 7:58 am

So, I got a phone call yesterday afternoon. The Neuro Clinic has scheduled me for a surgery consultation on Wed. (tomorrow) with a general surgeon for my muscle and nerve biopsy.

Eek. After waiting so long, it feels weird to have things moving so quickly. Thankfully, I was able to get medical transport lined up to take me to the south side of Houston for this.

I'll be preparing my list of questions for the appointment.
"Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal." 2 Corinthians 4:16-18

"Since the creation of the Internet, the Earth's rotation has been fueled, primarily, by the collective spinning of English teachers in their graves."
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Postby Atria35 » Tue Mar 20, 2012 9:16 am

Glad to hear you have some way to get there are do this! Good luck!
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Postby Nadia » Thu Mar 22, 2012 12:27 pm

Will continue in prayer.
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Postby Sheenar » Thu Mar 22, 2012 1:00 pm

My appointment has been rescheduled for Wed. of next week. After waiting for medical transportation for a good while, I called and they were still trying to find a vendor to give me a ride.

So, the surgeon's office moved me to next week for the consultation. And I called medical transport and they DO have a vendor in place this time to give me a ride there.
"Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal." 2 Corinthians 4:16-18

"Since the creation of the Internet, the Earth's rotation has been fueled, primarily, by the collective spinning of English teachers in their graves."
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Postby Sheenar » Wed Apr 04, 2012 4:14 pm

My muscle biopsy is this coming Monday morning. It will be in the hospital OR under general anesthesia. Please pray for a successful/complication-free procedure and for the processing/lab testing of the sample to go smoothly.

Also, I had a ride to the hospital, but he just texted me saying that he wouldn't be able to drive me home from the hospital. So I am trying to find someone to drive me 5 days before my surgery. Stressful...
"Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal." 2 Corinthians 4:16-18

"Since the creation of the Internet, the Earth's rotation has been fueled, primarily, by the collective spinning of English teachers in their graves."
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Postby Atria35 » Wed Apr 04, 2012 5:07 pm

Praying!
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Postby Nadia » Thu Apr 05, 2012 9:00 am

Praying for you, Sheenar.
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Postby Sheenar » Fri Apr 06, 2012 8:24 am

Still trying to find a ride. My friend said he would take me if it came down to the last minute and I didn't have anyone, but is afraid he'll be late for work if he takes me (so wants me to find someone else if possible).

Frustrating.

Next week is going to be nuts. Muscle biopsy on Monday and then I'll be starting a 4-day in-home EEG (where they glue all those electrodes to your head) on Thursday.

Anyway, not feeling great today, but am going to try to make it to the Good Friday service at church this afternoon.
"Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal." 2 Corinthians 4:16-18

"Since the creation of the Internet, the Earth's rotation has been fueled, primarily, by the collective spinning of English teachers in their graves."
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Postby Sheenar » Sun Apr 08, 2012 8:54 pm

Didn't find a ride with a friend/church member, but medical transportation wound up setting me up with a cab-type service to take me there and back in the morning.

I am just not sure they'll do the procedure since I don't have anyone to stay with me at home after (for that first 24 hours). They didn't tell me I needed someone (I still tried to find someone, but no luck), but requiring that is usually the norm for procedures under general anesthetic.

Also, I found out that the anesthetic they will be using brings a higher risk of complications for people with/suspected of having mitochondrial diseases. I'm going to talk to them in the morning and see if they could possibly change to another.

I am feeling anxious, as I usually am feeling before a procedure. Please pray that everything goes smoothly. A lot is riding on this.

I do have a friend that lives in Houston who is meeting me at the hospital to be with me before and after the procedure (until transport comes to take me home) so I don't have to face it alone. For that I am very grateful.
"Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal." 2 Corinthians 4:16-18

"Since the creation of the Internet, the Earth's rotation has been fueled, primarily, by the collective spinning of English teachers in their graves."
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Postby Okami » Mon Apr 09, 2012 8:05 am

Know that I've been continuously praying for you, dear friend. <3
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Postby Sheenar » Mon Apr 09, 2012 7:53 pm

Made it home. Muscle biopsy went okay. They kept me for hours in the post-op area because my BP dropped really low (I was unconscious--waking up and going back-- for most of that time --was shocked that the nurse said it was 4:30 when I woke up finally all the way)--but lots of saline fixed that issue.

My friend even cancelled her appointments this afternoon (she is a dog trainer) to stay with me at the hospital until my transportation arrived to take me home.

I am hurting a good bit (both my biopsied leg and also my throat from the intubation), but able to bear some weight on the biopsied leg. Should be a lot better by Wednesday.

My muscle sample was taken to the lab of this doctor who is "the" person to process these things. So now I wait for the long (6+ months) wait for results.

Thanks, y'all for praying for and thinking of me! I really do appreciate it!

Now I have a couple of days to rest and recoup before I have to go to my neuro to be fitted for my 4 day in-home EEG.
"Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal." 2 Corinthians 4:16-18

"Since the creation of the Internet, the Earth's rotation has been fueled, primarily, by the collective spinning of English teachers in their graves."
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Postby Sheenar » Tue Apr 10, 2012 6:12 pm

Having some issues with pain control today. Hurting pretty badly. Ace wrap is wonderful for holding an ice pack on your leg.

Please pray that I will have restful sleep tonight. I am hoping to feel okay enough tomorrow to go to an appointment and then college group tomorrow night. Have two very important appointments on Thursday.

Leon has been taking good care of me and Marzipan is being her usual "kitty nurse" self when I'm recovering from something.
"Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal." 2 Corinthians 4:16-18

"Since the creation of the Internet, the Earth's rotation has been fueled, primarily, by the collective spinning of English teachers in their graves."
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Postby Makachop^^128 » Tue Apr 10, 2012 6:14 pm

Will be praying I hope you feel better.
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Postby Okami » Tue Apr 10, 2012 6:16 pm

Sheenar (post: 1547570) wrote:Ace wrap is wonderful for holding an ice pack on your leg.


That is brilliant. *mental note* Praying for your pain reduction, hon.
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Postby eightluvver888 » Wed Apr 11, 2012 7:51 pm

Praying that God will help you feel better soon.
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Postby Nadia » Wed Apr 11, 2012 7:53 pm

Will continue in prayer.
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Postby Atria35 » Thu Apr 12, 2012 5:20 am

Always praying!
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Postby Sheenar » Thu Apr 12, 2012 8:09 am

Stayed home and rested yesterday instead of going anywhere. I am glad I did. I am hurting much less today. Still trying to not do too much, but I think I can make my appointments today. :)
"Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal." 2 Corinthians 4:16-18

"Since the creation of the Internet, the Earth's rotation has been fueled, primarily, by the collective spinning of English teachers in their graves."
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Postby Zeldafan2 » Thu Apr 12, 2012 8:37 am

Oh, that's a blessing. :) I will pray for you Sheenar.
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Postby TopazRaven » Thu Apr 12, 2012 9:15 am

I'm still praying for you too. I'm glad your pain has become in least a little more manageable then.
For I am convinced that neither death nor life, neither angels nor demons, neither the present nor the future, nor any powers, neither height nor depth, nor anything else in all creation, will be able to separate us from the love of God that is in Christ Jesus our Lord.

NIV, Romans 8:38-39.
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Postby Sheenar » Tue May 08, 2012 10:40 am

Oh snap. I just talked to my rheumatologist's office. They said they have my biopsy results (already? I thought it took a lot longer than one month--most other patients I have talked to said their results took 8-12 weeks at least to come in.) I have an appointment tomorrow morning.

My aunt is coming with me, thankfully. I will keep y'all updated.
"Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal." 2 Corinthians 4:16-18

"Since the creation of the Internet, the Earth's rotation has been fueled, primarily, by the collective spinning of English teachers in their graves."
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Postby Atria35 » Tue May 08, 2012 10:45 am

I'm glad to hear that they got it through so quickly (slow day at the office?), hoping that you find something out!
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Postby anlptgtsg » Tue May 08, 2012 1:17 pm

Praying for good results. God bless.
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Postby AdriTan » Tue May 08, 2012 4:31 pm

Praying!
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Postby Sheenar » Thu May 10, 2012 5:47 pm

Rheumy said that they only did a mitochondrial stain (no mtDNA testing) and it looked normal. Said that it doesn't completely rule out the possibility of mitochondrial disease--just that the biopsy was normal with what they did.
Rheumy told me that I have fibromyalgia (which I don't buy for several reasons I won't go into here). And wanted to put me on Lyrica. But I told him I wanted to do more research first. Then he said he can't really do anything else for me since I don't have an autoimmune disorder. And to follow up with the Neuro dept.
Went up to the Neuro dept. to go talk to the nurse since she hadn't called me back. She said they hadn't received the biopsy report yet to give me a copy. Said they didn't do the mtDNA testing because they "don't do that" and I'd need to ask the neuro I see there to order that testing. Next available appointment with her is mid-July. She isn't in the office this week, so I couldn't talk with her. By July, I don't think my sample will be viable for that kind of testing. That's what I asked them to do when they scheduled the biopsy!
I was put on a list for cancellations.

I don't know where to go from here. Still no answers. I am not a happy camper. That biopsy was rough on my body and I really don't want to have to repeat it because testing wasn't done that should have been.

So now I am still where I was in regard to knowing what is going on with my body. So frustrating.

About to start a new dietary program recommended due to my multiple food sensitivities. It's supposed to help a lot with my symptoms. It will take about 3-4 weeks to see results. I'm trying to be hopeful.

Thanks, y'all for praying!
"Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal." 2 Corinthians 4:16-18

"Since the creation of the Internet, the Earth's rotation has been fueled, primarily, by the collective spinning of English teachers in their graves."
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Postby Nadia » Thu May 10, 2012 7:48 pm

I will continue in prayer for you, Sheenar.
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Postby Sheenar » Sat Aug 18, 2012 8:39 am

So...I have been dropped by my downtown neurologist and my local neurologist both. I now have no neurologist.

Downtown neuro wants me to go see the mito specialist downtown --but her office doesn't want to accept me as a patient because my stain was normal. Said to submit the findings from my cardiologist and my local neuro (sharp transients on the EEG) and they'll review and "consider".

Something neurological is going on. I was told by my local neuro to drive only here locally. Fatigue definitely aggravates whatever is going on with my brain.

Not sure where to go from here. I went to my primary care MD and she is getting pretty frustrated because she writes these referrals and then several doctors have dropped me because they reach the end of what they can do.

The only treatment for mito is the supplement cocktail and diet currently (which I am doing --and have had substantial improvement on the cocktail--still have to be careful not to overdo things, but am not flat-out on the couch so much of the time now). My PCP asked why I am still pursuing the diagnosis.

I just want to be able to show that this isn't all in my head --that what is happening is real.

I'm also a bit scared because of the neuro stuff going on. I am looking at/working toward moving closer to Houston itself so that I have access to the Metro buses/MetroLift so that I can get rid of the car. I can drive for now, but I suspect that the time is coming where it will no longer be safe for me to do so. (Plus the car is a HUGE expense that is really killing me right now--I'm considering sending the car back before moving because of the money situation). I also REALLY, REALLY want to get back into dog events/training --haven't been able to due to finances --but getting rid of the car would free up some money so I can do dog stuff again. I want to finish Leon's Rally Novice title and do some Obedience. :)

I won't wind up moving for a while due to waiting lists and all that --but I'm wanting to get the process rolling. Also, have put off starting that process because of a guy friend here that I have feelings for (who has been an awesome, supporting person for the past 2 years). But things are getting to where I'm going to have to make tough choices to do what is best for myself.

So, tl:dr --please pray for me --that God would provide the right care for me to treat the symptoms of my disease and keep me functioning for as long as possible.

Also please pray that I would be able to find somewhere safe/clean to live in the Houston area. So many of the low-income housing places are in really ghetto/bad areas of town (as in people getting shot down in the street). So I'm doing my research and searching for housing in better parts of town with less crime/gang activity.
"Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal." 2 Corinthians 4:16-18

"Since the creation of the Internet, the Earth's rotation has been fueled, primarily, by the collective spinning of English teachers in their graves."
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